Current National Registries

Current National Registries

Countries with existing and well established registries will be supported with extractions of the required data from their home registries for ISAR.

The existing registries include:

ArgentinaArgentinian Severe Asthma RegistryFundacion CIDEA, Buenos Airesn/a
Australia and New ZealandAustralasian Severe Asthma Network Registry (ASAN), previously Severe Asthma Web-based Database (SAWD)Australasian Severe Asthma Network (ASAN)View
BelgiumBelgian Severe Asthma Registry (BSAR)Belgian Respiratory Society (BeRS)View
BrazilBrazilian Severe Asthma Group (BraSA Group)Hospital Moinhos de Venton/a
BulgariaBulgarian Severe Asthma Registry (BULSAR)Medical University, Sofian/a
CanadaCanada Severe Asthma Registry (CSAR)Vancouver General Hospital View
ColombiaColombian Severe Asthma RegistryFundación Neumológica Colombianan/a
DenmarkDanish Severe Asthma Registry (DSAR)Copenhagen University Hospital, Bispebjergn/a
EstoniaEstonian Severe Asthma Registry – under developmentUniversity of Tartu and Lung Clinic, Tartu University Hospitaln/a
GermanyGerman Asthma Network (GAN)German Asthma NetView
GermanyUniversity Medical Center Essen-RuhrlandklinikEssen University HospitalView
GreeceGreek Severe Asthma RegistryAttikon University Hospitaln/a
FinlandFinnish Asthma RegistryTampere University Hospitaln/a
FranceRecherche sur les Asthmes Sévères (RAMSES)Société de Pneumologie & Publique-Hôpitaux de ParisView
IcelandIceland (Asthmabio)National University Hospital of Iceland, Reykjavikn/a
IndiaPulmocare Research and Education [PURE] FoundationRespiratory Research Network (RRN)View
IrelandIrish Severe Asthma RegistryBeaumont Hospital, Dublinn/a
IrelandINhaler Compliance Assessment for Symptomatic UNcontrolled Asthma (INCA SUN)Royal College of Surgeons and Trinity College DublinView
ItalySevere/Uncontrolled Asthma Registry (SUA)Italian Severe Asthma Network (SANI)View
JapanKinki-Hokuriku Airway disease Conference (KiHAC)Kinki-Hokuriku Airway Disease Study GroupView
KuwaitKuwaiti Severe Asthma RegistryKuwait University, Al-Rashed Allergy Centern/a
MexicoMexican Severe Asthma RegistryHospital Médica Sur, Ciudad de Méxicon/a
NetherlandsRegistry of Adult Patients with Severe Asthma for Optimal Disease Management (RAPSODI)RAPSODI FoundationView
NorwayNorwegian Severe Asthma RegistryUniversity of Bergen, Bergenn/a
PolandPolish Severe Asthma RegistryAsthma and Allergy Medical University of Łódźn/a
PortugalRegisto de Asma Grave Portugal (RAG)Rede de Especialistas em Asma Grave (REAG)View
RussiaRussian Severe Asthma Registry (RSAR)Russian Respiratory Societyn/a
Saudi ArabiaSaudi Arabian Severe Asthma RegistryKing Fahad Medical City, Riyadhn/a
SingaporeSingapore Severe Asthma Registry (S-SAR)The Academic Respiratory Initiative for Pulmonary Health (TARIPH)n/a
South KoreaSouth Korean Severe Asthma RegistrySeoul St. Mary’s Hospital, Seouln/a
SpainSpanish Guideline on the Management of Asthma Database (GEMA-Data)GEMA Executive Committeen/a
SwedenSwedish Severe Asthma Registry – under developmentSkåne University Hospital, Lund University, Lundn/a
TaiwanTaiwanese Severe Asthma RegistryTaipei Veterans General Hospitaln/a
United Arab EmiratesUnited Arab Emirates Severe Asthma RegistryRashid Hospital, Dubai Health Authority, Dubain/a
United KingdomUK Severe Asthma Network and National Registry, previously British Thoracic Society Severe Asthma RegistryUniversity of Belfastn/a
United States of AmericaCHRONICLEAstraZeneca MedXView
United States of AmericaNational Jewish Health (NJH)Board of Directors, Officers and Administration, and Council of National TrusteesView

Linking Severe Asthma Registries to Primary Care Electronic Health Records

United Kingdom

The Optimum Patient Care Research Database (OPCRD) is a bespoke database with focus on patient-reported outcomes that contains anonymous data from over 800 UK general practices across England, Scotland, Wales, and Northern Ireland. The database contains both longitudinal medical records and, for approximately 10% of patients with asthma and COPD, the results of patient-completed questionnaires. Hashed NHS identifiers can be obtained for all patients in this database during the anonymised data extraction process. The ability to link severe asthma registry data with data in primary care databases such as the OPCRD, will be an added advantage and allow in-depth characterisation of:

  • Healthcare resource use
  • Medical history and comorbidities
  • Medication use, including adherence and persistence

To learn more about the OPCRD, please click here.